My guess is he'll say, well, it's headed in the right direction but we probably should just keep an eye on things I know my Dr. Lo ;) Good guy and as we approach 6 years of this battle, I'm at a pretty good place mentally. Do I get depressed? You bet. Does the right side hernia cause me pain? Oh yeah. Neuropathy? We're old friends. Fatigue? See neuropathy. But I'm still here and quality of life is all in all good and tolerable.
Part of this is because I've been selective about and willing to say no to certain treatments. I've felt like if things got THAT bad, it'd be time to talk to Palliative Doc about a Marilyn Monroe Cocktail.
Some men will do ANYTHING to live longer. I'm not in that group. Please see what some men go through:
One woman wrote to a blog I follow:
Hello. Thank you for including me. My husband has Alzheimer’s so I’m doing all the research for him. Dx 2010, EBRT, PSA began to rise by 2013 but no bone mets till 2018. Now on Lupron and Zytiga. Can anyone share how long that combo was effective? Thank you!
Rest assured people that love me, if I have Alzheimers AND metastatic PCa, just lemme go........
One man wrote:
Hi this is my first time on here. I want to give y'all a quick run down of my history. I was diagnosed with stage 4 metastasis prostate cancer on 2/14/10 at 8:30 am i had a rapid prostatectomy on 8/25/10 then a double casteration on 8/28/11 i went into remission until 4/4/14 from then on its been a roller coaster ride for me and my wife. I've had 4 different cycles of chemo and 3 little zaps of radiation. We went on a little get away to South Carolina on 12/28/18 to 1/5/19 right before we left my oncologist had me do 2 different scans . On the flight back i was in some of the most severe pain i have ever been in my life. I ended up going to the emergency room and they did a MRI of my lower back . They found that my cancer is growing at a very fast rate. On my t-10and t-12 is basically separating and it kept me from walking . I made an appointment for my oncologist she told me there is nothing more they can do for me . I have done all the trials and stuff . They gave me 4 months to live. I'm on hospice now and just in the past couple of weeks i can tell my cancer is spreading. Im having to use a walker all the time now and telling my left leg to walk . My hospice nurse explained that my cancer is spreading to my brain now and is almost acting like Parkinson's disease. The only good thing is me and my wife went to the funeral home and made all my final wishes . Idk if anyone else has done or considered this but you wont believe the relief it takes off your loved one. The only thing i have left to do is but my URN online it is so it is 40% cheaper to buy online and your choices are far greater. I think i got everything out i wanted to say . My prayers are with everyone going through these difficult times both the person and their caregivers/wife. God bless
Can you imagine all the treatments he took (surgical castration!)? The multiple rounds of chemo. The pain.
One reason I live and struggle to live in California is that when my time comes, I don't care to butcher myself, to poison myself again, etc. If it's a matter of keeping myself comfortable, I'd talk with my Docs.
But Cali has a Compassionate Death Act and the conversations have already been had. I won't go down a slow painful road.
Heartelf thoughts to the man and his wife in SC.
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