Tuesday, August 30, 2016

Physical Update and Disease Status

I had a blood test and DRE done Monday.  The DRE was said to be overall "smooth with some fibrosis on the right."  The right is where the unwelcome guest lives and has perpetually fucked with my life for 30 months.  The PSA test came back at a 1.49;  right after chemo and lupron, my PSA stayed immeasurable for the first few months, then rose to a .27, then to a .97 and I began 2016 with a rise to 1.27.  So there is a steady rise.  My oncologist sums it up as, " He is currently in complete remission by CT scan, but his rising PSA indicates persistent disease."  My little unwelcome friend seems to be growing again.

The longtime onclogist refuses to appeal AETNA's denial of an MRI because I have expressed it as unlikely that I will ever take lupron of undergo chemo again.  It may be time for a new oncologist....perhaps one who doesn't work for a NYSE publicly traded company.

Meanwhile I'm on Day 5 of CBD, getting used to the psychoactive side effects and the fact that my gas smells like dank weed once in a while.


Saturday, August 27, 2016

Day 2 of CBD

Slept like a babe last night and woke fairly quickly for me with no unusual grogginess. Felt reasonably good today and less foot and hand pain........and was in a remarkable mood!

Next dose taken and off to bed.

Friday, August 26, 2016

I Am Now on CBD Therapy!

It took longer than I imagined, required additional investigation and coordination but I am now a cancer patient using CBD oil (cannabidiol) to treat the stubborn tumor that resides in my prostate.  For the first time in two and a half years, I feel hopeful that I may just be able to kill this thing, something oncologists can't seem to do.

Now for the record: THE CBD DOES NOT RESIDE WITH ME.  IT IS IN THE POSSESSION OF A GOOD FRIEND IN TRAVIS COUNTY.

Trying to open yourself up to sending a few thousand dollars to someone you've never met was quite a bit out of my comfort zone but the person on the other end of the phone was good to their word and I have my alternative medicine.

I've taken the first dose and can't say I feel particularly high from the effects although it is a 1:1 CBD to THC ratio with the dosing being a gram a day mixed with coconut oil and taken as a suppository to get it's absorption as close to the tumor as possible.

My heartfelt thanks to all who sent prayers, contributed, and loved me me during the really hard parts.

More news to follow as I have it!

Monday, August 1, 2016

Thank You For The Help - Everything Is In Process

A hearty thank you to all who contributed!  Arranging getting the oil has been more difficult than I'd initially understood but it IS in process!  I'll post more once I have a good update.